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With genomic breakthroughs happening at breakneck speed, Informed Consent explores the question of just how much knowledge is too much. And who gets to decide?
In Informed Consent by Deborah Zoe Laufer, an ambitious geneticist is hired to help solve why a Native American tribe is being devastated by diabetes, but her research threatens to destroy their most sacred traditions.
Informed Consent was inspired by the case of the Havasupai Tribe who dwell deep in the Grand Canyon versus Arizona State University. In 1989, members of the Havasupai Tribe began giving DNA samples to a scientific team from Arizona State University in the hopesView more
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